Sixteen years ago today I escorted my dear mom into an experience of a lifetime. Brain Surgery. When I reflect on it now, I’m not sure how we pulled it off.
I was much younger then and so were my siblings. My parents were in midst of a divorce and not really on supportive terms with one other yet. It all happened pretty quickly. My mom lost some hearing in one of ears. She thought she had some water clogged up in there from swimming but after a bit in never unclogged. She went to get checked by her primary doctor. It was nothing short of a miracle that he took an extra step and told her to go the Ear, Nose and Throat Specialist. They ran an MRI. I remember going with her to hear the ‘results’. They found a tumor, a small one, that was tied up in the spot were her hearing, facial and balance nerves interweave. We were shocked to say the least. They said it was slow growing and most likely malignant. They called it an acoustic neuroma. She had a choice- they could operate now or she could wait. My mom being as wise as she is said she wanted it out now. At least if it’s small then there shouldn’t be much permanent damage.
Mom would be in the hospital up to 2 weeks and out of work for another 6 weeks. A whirlwind begun of figuring out surgery, doctors, wrapping up her divorce, how to care for the kids, and how to care for my mom. If you know my mom, you know she likes to do things right. She covered all her bases included creating a will and reviewing it with me so I understood her wishes if it came to that. I think I held it together with her but I remember a HUGE knot in my stomach at the thought of losing her. She was my rock, she held our family together, she was young, and she was my mom.
May 1, 1998 we checked her into the hospital and mom got prepped for a 6-hour brain surgery. She had top-notch doctors and the outlook was good. After 6 hours she wasn’t out of surgery. My grandma and I were getting anxious. (Sidenote – I’m so thankful for my grandma and the role she played for us and her daughter. She was the other ‘adult’ to help me manage it all. She was a true lifesaver.) FINALLY, they came out and said she made it through the surgery and they removed the full tumor. What a big, big sigh of relief. Now what?
I can tell you it wasn’t what I expected. At all. When I first saw her I couldn’t hold back the tears. She was of course, not all with it, with half her head shaved and the biggest scar I’ve ever seen across her skull. It was anything but fun for her. She didn’t want all the medication but she couldn’t even sit up without puking because the ‘balance nerve’ being involved. She finally agreed to take the nausea meds so she could sit up. It was a VERY SLOW process. My grandma and I took shifts overnight; friends and family took the kids and brought food. It was a joyous event when mom could finally walk the length of the hospital hallway. That was when they would send her home!
Not that home was easy. All the siblings, grandma’s, grandpa’s and extended family pitched in. Everyone had to play a role to keep the house and mom on track. Walking her around the circle, carpooling the kids around, grocery shopping and eventually driving mom to work and back. Recovery was a long, long road. My mom being the strongest person I know did it with grace, humility and an awesome sense of humor.
When she was finally up and around we decided to go to an acoustic neuroma support group. We both left the meeting in tears of gratitude. So many there had lost their hearing or were paralyzed on one side of their face. Some never regained their balance. Mom was so lucky. She is an incredible piano player and to not be able to hear the tune would have killed her. To not have movement in her face or to be able to move her body the same would have been so hard on her. Like I said, nothing short of a miracle. We cried in the car together and thanked the universe her primary care doctor followed his intuition to have her checked. Besides just having her still here, she was going to fully recover.
Since then we’ve adopted May 1st as Life Day in our family. Every year we take time to appreciate that we still have our mom. We take time to share our love for one another. We reflect on how important it is to have that unconditional love in our family. We’ve had loss and we’ve had miracles. Both have been incredible opportunities for us to grow and to learn more compassion in life.
Guess what mom and sissies? Someone, somewhere must have heard about our Life Day. I saw online that the Love Foundation has designated May 1st as Global Love Day. How perfect is that?? It’s gone global. Their tagline is ‘Love begins with me.’ It’s beautiful and true.
I love you momma and will once again spend today thanking the powers that be for you!! You are our rock, our example and our shining star. Thank you, thank you.
So go out NOW and tell the people in your life that you love them. Show compassion to others. Let go of that which doesn’t serve you. Love yourself. Don’t wait. Do it NOW. You never know.